Baby Creed is one in one hundred. "He's ten months old, he's had three open heart surgeries already, and he's got one more to go, when he's about three," says his mother Jamie Rosenbalm.
He was born with a Congenital Heart Defect and his mother tells News 5 they've basically lived at Vanderbilt these last several months.
"The first time when he was born we were there seven weeks and then in October we were there five weeks. It was supposed to be a 7-10 stay, and we ended up five weeks," she says.
And, they're not alone. "There's 35 different know heart defects and you can have more than one, a child can have several different heart defects," says Agnes Rhodes.
That's why 'Mended Little Hearts' is there. They're a support group for families that have a child born with a heart defect.
"You can't imagine how devistating it is when you hear the news your child has a heart defect. So we're there to support each other, to offer hope to each other, help, healing, to go through the healing process with them. Just to walk on that journey with them," says Rhodes.
'Mended Little Hearts' released 99 red balloons and 1 white balloon to represent the one in 100 who are born with a Congenital Heart Defect.
"We are doing this in honor of all our little heart angels that are not with us and our little warriors. The ones who are fighting each day," Rhodes tells the crowd.
Rosenbalm tells us, "it's amazing, I have a great support group, but it's nice to have somebody that is there and you can talk to that's been there."
So, next time you look up to the skies..remember that one...and their families. Because they're soaring with strength, and truly, one in a million.
There will be another balloon release Sunday the 10th at 2 p.m.,at Common Ground Church in Bristol, Tennessee.
For more information about 'Mended Little Hearts' visit their website: http://www.mendedhearts.org/